Roald Dahl's Marvellous Children's Charity shows its support for the siblings of seriously ill children in the UK.
Roald Dahl's stories famously champion underdogs, from Charlie Bucket to Matilda and these characters always prevail. As for real-life underdogs and their brothers and sisters who often get forgotten, life can be very different. Many of the seriously ill children that we help have incredibly brave siblings and just like Sophie in The BFG, they face frightening and uncertain circumstances with courage.
Children such as six year old Seren who has epilepsy and lives on a remote farm in Mid-Wales is cared for by her Roald Dahl nurse Roz. Her brother Ilan, who is twelve years old often misses out on attention when his sister requires more from their mum and dad. Seren and Illan's mum Ruth is proud of Illan and says, "He has to deal with a lot more than other children. Sometimes he has to stop the school bus while he helps me administer Seren's emergency medication. He's older than his years."
It can be very difficult for families to provide the siblings of a seriously ill child with the attention they need as Renata, mum to Dominic, Elliot and Lilia would agree. Dominic aged nine has a rare condition and has spent a lot of time in and out of hospital since he was born. She says, "They sacrafice so much for their little brother, both when he is in hospital and when we are home. They accept that we can't do what their friends do and that nothing is ever 'definitely' going to happen, as you never know with a child like Dominic, and they have been dissapointed too many times."
Roald Dahl's Marvellous Children's Charity recently invited Renata and her family to attend the UK premiere of The BFG. It was a great opportunity for the whole family to spend some quality time together and enjoy a special outing.
There is no doubt that life will continue to be difficult for siblings like Ilan, Elliot and Lilia, but we think that they are all truly marvellous. Find out more about the children we help and donate to support more seriously ill children today.