Celebrating World Sickle Cell Day

Roald Dahl's Marvellous Children's Charity celebrates World Sickle Cell Day in 2018

Posted by
Roald Dahl's Marvellous Children's Charity
Posted on
10:02am, 19th June
Categories
Charity
World Sickle Cell Day

Celebrating the work of Roald Dahl Nurses who provide expert care and support to children and families affected by Sickle Cell Anaemia.

There are currently 62 Roald Dahl Nurses working in communities across the UK to provide the best possible healthcare for seriously ill children. Nine of these nurses specialise in supporting children and young people affected by haematological conditions such as Sickle Cell Anaemia and Thalassaemia. On 19 June which is World Sickle Cell Day, we celebrate the incredible work Roald Dahl Nurses do to help children, young people and families affected by serious blood conditions

Roald Dahl Lead Transition Clinical Nurse Specialist Giselle works at Kings College Hospital NHS Foundation Trust in London and cares for around 300 children and young people in the London area. Along with the other Roald Dahl haematology nurses, they care for more than 2,700 children and young people in the UK

Roald Dahl Nurse Giselle has a varied role as a specialist nurse and can be seen providing guidance and support to help young people manage their serious blood conditions. She organises patient support groups which encourage young people to share their experiences and help influence healthcare services to ensure they receive the best possible healthcare. She also works to educate other healthcare professionals, continuing quality care for people affected by Sickle Cell Anaemia and Thalassaemia. Roald Dahl Nurse Giselle also supports young people transitioning from child to adult healthcare services which can be a challenging time for young people. She's even working on a film to increase awareness and educate others about the importance of supporting transition. 

Roald Dahl Nurse Giselle has had such a profound impact on those in her care that she has also been nominated for the Windrush 70 Award which form part of the NHS70 (70 years of the NHS) celebrations. Her line manager said, "it is almost impossible to put into words the influence that Giselle has had...she has devoted every moment caring for a unique and extremely complex group of patients and has made countless changes and contributions to develop the sickle service to what it is today. She has been instrumental, putting patients in the centre of everything. Giselle shows commitment to her patients, whether it's staying late to ensure they are managed effectively or taking an anxious teenager and their family through the transition process. She is the key to effective communication and advocates strongly for her patients."

Roald Dahl Nurses like Giselle are enhancing healthcare services for children, young people and families affected by serious blood conditions like Sickle Cell Anaemia. Help us to provide more expert care and support to others, make a donation this World Sickle Cell Day and ensure Roald Dahl Nurses can continue to provide the best possible healthcare.