Improving Transition Services For Young Adults

Posted by
Roald Dahl's Marvellous Children's Charity
Posted on
12:25pm, 29th May
Improving Transition Services For Young Adults

Roald Dahl Nurse Neil helps to improve transition services for young adults in his care.

For young people with chronic and complex health needs, the transition from children's to adult services can be a challenging and for many, an anxious time. Having dedicated staff with expertise in adolescent care and transition enables the young person to build confidence and feel in control, as they navigate towards caring for themselves and negotiate adult healthcare systems independently of their parents.

Roald Dahl Clinical Nurse Specialist Neil cares for teenagers and young adults at Barts Health NHS Trust. He started in post in December 2017 and he is already making a considerable difference to the lives of young people with serious health conditions. One of his objectives is to deliver the Department of Health's 'You're Welcome' Quality Standard across the Trust for young peoople friendly health services (which sets out principles to help commissioners and service providers to improve the suitability of NHS and non-NHS health services for young people.)

Neil is currently working across three of the Trust's five main sites, supporting young people with sickle cell anaemia at Whipps Cross University Hospital, those with diabetes at Newham University Hospital and the young people requiring dialysis at The Royal London Hospital.

He is also providing Trust-wide support for teenagers between the ages of 16-18 who are admitted to adult ward areas. As part of Neil's work, he helps tackle issues that are important to the Barts Health NHS Trust Youth Empowerment Squad (YES), made up of a group of young people who have extensive experience and knowledge of healthcare. The group meets regularly to share their views and improve patient experience.

Roald Dahl Nurse Neil says. "I feel very privileged to be a Clinical Nurse Specialist for teenagers and young adults. I visit clinic areas where teenagers are being prepared to transition from children's to adult services and I review good practice so we can share this across the Trust. With the support of the Youth Empowerment Squad, we can really begin to improve the experience of teenagers and young adults and their voice can begin to be heard loudly."

To support Neil's work, we are raising funds to secure a second Roald Dahl Nurse - a Roald Dahl Transition Co-ordinator - to help Neil develop the service and support young people undergoing difficult transition. With a second nurse in post, they will be able to extend the age remit for the young people they work with, increase the number of specialties and offer more one-to-one support to young people with long-term conditions.

Find out more about Roald Dahl Nurses and the conditions they support.

Get involved and help us to fundraise for the new nurse post. Contact us at: