Roald Dahl's Marvellous Childrens Charity

Information for parents

Our Marvellous Family Grants provide support to help UK families in financial hardship who are caring for a child with a serious illness.

If you are a parent or carer, please read the following information carefully before contacting an applicant officer.

Who can we help?

Marvellous Family grants are open to any family residing in the UK who meet the following criteria:

  • There is a child who has a serious illness that could be life-limiting, as described by the following:[1]
  • Group 1 - Life threatening conditions for which curative treatment may be feasible but can fail. (e.g. epilepsy, irreversible organ failures of heart, liver, kidneys.)
  • Group 2 - Conditions where premature death is inevitable. (e.g. cystic fibrosis.)
  • Group 3 - Progressive conditions without curative treatment options. (e.g. Batten disease, mucopolysaccaridoses, muscular dystrophy.)
  • Group 4 - Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death. (e.g. sickle cell disease, cerebral palsy, multiple disabilities such as brain or spinal cord insult.)
  • Group 5 - Syndromes without a name (SWAN) causing severe, chronic disability or illness.

Please note that the charity's remit excludes all forms of cancer owing to levels of support for children and young people with cancer being far higher than those for other conditions. We are also unable to support applications for children and young people who solely have learning or behavioural difficulties including autism and ADHD.

  • The child is eligible to receive Medium or High Rate DLA (the Care component) or the Enhanced Rate for 6 of the 12 activities in the PIP or has an equivalent level of need.
  • The child has yet to reach their 25th birthday.
  • The family are living in financial hardship.
  • The family has not received a grant for this child from the Marvellous Family Grants in the last 12 months.
  • The grant is for the benefit of the child directly.            

What are you able to fund?

Grants of up to £1000 are available to enable families to access a variety of support including;

  • Physiotherapy, speech and language therapy, hydrotherapy and counselling, where the provision on the NHS is not sufficient.
  • Play, art or music therapy sessions.
  • Travel (including parking), accommodation and subsistence costs whilst the child is in hospital.
  • Specialist equipment, for example specialist seats and walkers, epilepsy monitors etc.
  • Everyday items that will improve the child's quality of life and keep them out of hospital longer, for example furniture, white goods and clothing (where this is required because of the child's condition).
  • Attendance at medical/support group conference.
  • Ongoing social activities, lessons and memberships.
  • iPad/laptops, where there is evidence that it will be of educational benefit to the child.

This list is not exhaustive. Please note that we no longer fund holidays, day trips, property adaptations, deposits for vehicles, garden works, sheds/storage, utility bills, respite care or driving lessons. We cannot fund retrospectively i.e. where the item or support has already been paid for. We are also unable to help with requests where a statutory agency (such as local authorities or health services) has a responsibility to provide the item required.

How do I apply?

We are unable to accept applications completed by parents or individuals.  We are only able to accept applications completed via a health or social care professional employed by a statutory organisation (NHS or local authority). This could be a nurse, doctor, physiotherapist, occupational therapist, social worker, family support worker, health visitor etc. Ideally, this should be someone who knows your family and your history and would be happy to complete an application on your behalf. We call this person the Applicant Officer. 

 

The reason we only accept applications via this route is to ensure that criteria is met through an independent professional.  It greatly reduces our overheads by asking the application officers to check details for us thus ensuring a very fast decision process. If we had to do these checks internally we would not have as many funds available to help families.

 

How long does it take?

Applications are considered at a monthly grants allocations meeting. The application forms need to be submitted by a set date to be considered at each month's meeting. The application form needs to have been fully completed, including your signature. These dates can be found on the right hand side of the page. We will notify your Applicant Officer with the outcome of the application by the notification date, following the date by which they submitted the form. Depending on when in the month your form is submitted, your application could take between 4-8 weeks.

 

Next Steps

 

Once you have decided who will make the application on your behalf, please pass our details on to them and ask them to register with us in order to make an application.

 

Please note our fund is limited and we will be unable to fund every grant requested. Grants are generally awarded to eligible cases that demonstrate the greatest need, and where we feel our funding can make the biggest difference. 

 

[1] Adapted from: ACT, ‘A Guide to the Development of Children’s Palliative Care Services,’ 2009.   

What are you able to fund?

Grants of up to £500 are available to enable families to access a variety of support including:

-          Respite care or family days out

-          Play, art or music therapy sessions

-          Peer group or counselling sessions

-          Equipment or expenses so children can join in activities with their friends

-          Access to social communications technology

-          Expenses to attend a family support event or conference

This list is not exhaustive.

 

Who can we help?

Marvellous Family Grants are open to any family in the UK in which:

·         There is a child with a serious long-term health condition

·         The child is eligible to receive to receive Medium or High Rate DLA (the Care component) or the Enhanced Rate for 6 of the 12 activities in the PIP, or has an equivalent level of need

·         The child has yet to reach their 21st birthday

 

How do I apply?

Unfortunately we are unable to accept applications completed by parents or individuals.  We are only able to accept applications completed via a healthcare professional, social services, health visitors, or grant coordinators within an organisation. The reason we only accept applications via this route is to ensure that criteria is met through an independent professional.  It greatly reduces our overheads by asking the application officers to check details for us thus ensuring a very fast decision process.  If we had to do these checks internally we would not have as many funds available to help families.

 

Who are application officers?

We would be able to accept applications through your social worker, family worker, health visitors, occupational therapist, and grant coordinator within an organisation.  Someone working within the healthcare profession who knows your family and your history and would be happy to complete an application on behalf of you.

 

Next steps?

Please pass our details to your healthcare representative and ask them to contact us in order for an application to be made.  Telephone number 01494 890465 or email wufoo link

Application and notification dates